Hello!
Let`s not allow ourselves to be indifferent today!!!
Let's help to save the life of the child together!!!
Very urgently!!! Varya Rostova from Stavropol Territory NEEDS HELP!!!
Varyusha has been diagnosed with a rare genetic disease:
the 1-st Type of Spinal Muscular Atrophy!
The disease develops rapidly and takes baby`s strength. Baby is fading away, after all for a year she has not received any supportive therapy and therefore Varya does not hold her head, does not raise her legs, her hands do not obey her, she has difficulty with breathing and thus she sleeps under the Device for Non-Invasive Lung Ventilation (NIVL) at night.
Spinraza - the medicine which has been registered in